From the moment Milo was born and diagnosed, I’ve been writing to you all. Figuratively, that is. I’ve wanted to release my words out there and let them find a home where they may. I’ve wanted to produce documentaries to show the beauty of our everyday and how far we have come and how far we have to go. I’ve wanted my voice to be added to the thousands of others sharing this journey so that when another couple is delivered “the news”, they can see another example of how they are not alone. You see, that’s what the community of bloggers out there did for me. They kept my head above water in those early months, and I will never be able to express my thanks. I have tremendous respect for all the wonderful families who have offered their experiences so that others may learn from them. Words simply fall short.
I’ve been hesitant to write. I’m nervous to post. I’m scared to allow myself to be publicly vulnerable. The past 15 months have been a time of observation and introspection for me. They’ve been a time filled with grief, awe, confusion, painful and beautiful growth, and most importantly a time filled with tremendous love. In addition, I’m no Hemingway.
But with encouragement from our lemonade maker, Colette, I will throw my hat into the proverbial ring. We may have differences of opinion, and different approaches to advocacy, but what I find the most comforting is that we experience many of the same joys, and many of the same challenges. I humbly add my voice to the numerous others to raise awareness for my son and others living with Down syndrome.
Hopefully I’ll get posts out more often than Halley’s Comet comes around, but in the meantime, know that my son is AMAZING and cherished, know that there is much joy in our life, and know that I am beyond thankful to my family, friends, and new friends, for what they have done for me and my little family thus far.
I hope that I can return the favor and support you.
Amy
