Author Archives: coletteg

DSR Episode #35: NDSC Convention Prep with Marilyn Tolbert

Dr. Tolbert, President of the NDSC Executive Council was kind enough to spend an hour with us discussing the upcoming convention in Orlando.  It was enough to get us all really excited! First, some background on Marilyn.  She is one … Continue reading

Posted in Down Syndrome Radio | Tagged , , | Leave a comment

DSR Episode #34: End of Year Update!

The Down Right Awesome Dads give an end of year update.  Happy Holidays!  Happy New Year! Download Down Syndrome Radio, Episode #34.  

Posted in Down Syndrome Radio | Tagged , | Leave a comment

DSR Episode #33 – Black Day: The Monster Rock Band!

There is a new book out that we think you should read.  It is called Black Day: The Monster Rock Band.  Not only does it have a great storyline and really cool art, but there is a cool song too.  … Continue reading

Posted in Down Syndrome Radio | Tagged , , | Leave a comment

DSR Episode #32: Kayla!

We had a super special guest on the show for this episode – Princess Kayla herself!  Fresh from her appearance on the Today Show, Kayla tells us all about it! Some other recent highlights: Kayla travels to the White House … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , | Leave a comment

DSR Episode #31: Ricki Sabia of NDSC

We spent a wonderful hour with Ricki Sabia, Senior Policy Advisor of NDSC, and got to hear about the following great topics relating to education: Universal Design for Learning – a set of principles for curriculum development that give all … Continue reading

Posted in Down Syndrome Radio | Tagged , , , | Leave a comment

DSR Episode #30: LuMind Foundation with Dr. Michael Harpold

For those of you who have been living under a rock, there has been some REALLY exciting progress over the last few years in the area of DS research.  Who better to tell us about it than the Chief Scientific … Continue reading

Posted in Down Syndrome Radio | Tagged , , , | Leave a comment

DSR Episode #29: Potty Training!

Believe it or not, we actually felt qualified to take this one on ourselves!  Between us we have SIX children successfully trained! First things first – We know how lucky we are that our three children with Down syndrome took … Continue reading

Posted in Down Syndrome Radio | Tagged , , , | Leave a comment

DSR Episode #28: Special Guest Sara Rosenfeld-Johnson!

This was a great episode.  We were very honored to have Sara join us on the program! Sara told us how she got interested in speech therapy and her decades of experience.  We learned about how she discovered that traditional … Continue reading

Posted in Down Syndrome Radio | Tagged , , , | 1 Comment

DSR Episode #27: Inclusive Practices with Michael Remus

Michael Remus is an expert on inclusion.  He is a parent of two children with special needs.  He has been a teacher and has written several books.  But most importantly (to me anyway), he took an entire school district into … Continue reading

Posted in Down Syndrome Radio | Tagged , | Leave a comment

Let’s Have some Pre Buddy Walk Family Fun!

Let’s Have some Pre Buddy Walk Family Fun! Don’t Miss Our Annual Summer Event Get Your Tickets While Supplies Last!   DSA Summer Social “Take Me Out to the Ball Game” Tailgate Party & Ball Game Sunday, July 14 , … Continue reading

Posted in Uncategorized | Comments Off

2013 Buddy Walk Save the Date

  Save the Date…. 2013 San Diego Buddy Walk Oktoberfest Saturday, October 19, 2013 NTC Park at Liberty Station Down Syndrome Association of San Diego is pleased to announce that the San Diego Buddy Walk Committee is busy planning a … Continue reading

Posted in Uncategorized | Comments Off

DSR Episode #20: Current Challenges – Ages 2, 4 and 7

In this episode Jason, Mark and Rick each give an update on their child and the current challenges they are facing for their age category. Jason’s Dexter is two years old and is now walking.  What a big milestone walking … Continue reading

Posted in Down Syndrome Radio | Tagged , | Leave a comment

DS Research & Healthcare Symposium

21st Century Down Syndrome Research and Healthcare Symposium: Linking Research, Policy & Practice Saturday, June 22, 2013  8:30 am – 4:00 pm Bel Aire Ballroom (North Tower) Sheraton San Diego Hotel and Marina  1590 Harbor Island Drive, San Diego 92101 … Continue reading

Posted in Uncategorized | Comments Off

Please be patient.

Sadly, there are those who maliciously seek out to destroy websites that may have a security hole in them. Unfortunately, hackers were able to get into the Down Right Awesome website, and hack it and begin spamming from the site. … Continue reading

Posted in Uncategorized | Comments Off

One Mom’s Wish For Her Son With Down Syndrome

Our very own Down Right Awesome mama gives her take on why research is so important to us. Please read, share and don’t forget to donate to Down Syndrome Research and Treatment Foundation- DSRTF today to take advantage of the … Continue reading

Posted in Uncategorized | Comments Off

DSR Episode #19: Happy World Down Syndrome Day!

We got the band back together for a quick roundup of events happening in celebration of World Down Syndrome Day on 3/21.  Much like the podcast, this write up is going to be short and sweet. To celebrate, you can: … Continue reading

Posted in Down Syndrome Radio | Leave a comment

Episode #13: Everybody Plays with Kelle Hampton and Colette Cosky

There is something special going on here in San Diego this week.  The seeds for true inclusion are being sown.  These kids may think they are just playing with some cool toys in a really nice house, but they will … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , , | Leave a comment

Episode #12: Chip Gerhardt and the Buddy Walk

October is National Down Syndrome Awareness month and we kick it off with a bang.  We are very pleased to welcome Chip Gerhardt, Chairman of the Board of the National Down Syndrome Society (NDSS) to the show.  Chip is a … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , , | Leave a comment

This is me, asking you, to take my hand and help me make this real.

Guest Blogger Tawmis Logue had some things to share about how Dexter changed his life: The Down Syndrome Buddy Walk is just around the corner – and Team Down Right Awesome is ready to march! Would love if you could … Continue reading

Posted in Uncategorized | Comments Off

Episode #11: Dana Halle and The Learning Program!

Dana Halle has made HUGE contributions to the Down Syndrome community over the years.  She co-founded the Down Syndrome Foundation of Orange County many years back and more recently, she developed ‘The Learning Program’ which is accelerating education for people with Down … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , , , | Comments Off

DSR Episode #10: Apptastic!

Rick from Down Syndrome Daily joins us again to talk apps.  In typical dad fashion, we quickly take a turn for the worse and venture off topic.  After trading bodily fluid stories, we get back on track and discuss our … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , , , , , , | Leave a comment

DSR Episode #9: The Jérôme Lejeune Foundation

The mission of the Jérôme Lejeune Foundation is a simple and concise summary of the reasons why we started this podcast:  Research, care, advocacy.  Seems like a perfect match! Dr. Jérôme Lejeune was a French pediatrician and geneticist who, in … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , , , , , , | Leave a comment

DSR Episode #8: Special Olympics

In the short time that we have been recording this podcast, we have always stressed the importance of siblings in our kids’ lives.  In 1962 one sibling raised the bar for brothers and sisters everywhere.  Rosemary Kennedy’s sister believed that … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , , , , | Leave a comment

DSR Episode #7: NDSC Convention Download

Running on fumes and adrenaline, we recap the highlights of the NDSC Convention from a very busy weekend in Washington, DC.  From advocating on Capitol Hill to dancing the night away – with workshops, exhibits, hallway and pool meetings in … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , , , , | Leave a comment

DSR Episode #6: Down Syndrome Daily and NDSC Convention Prep

In the first few installments of this humble podcast, we found ourselves continuously visiting one site for ideas for our “great/amazing/inspirational story” segment.  Down Syndrome Daily is an excellent resource for the Down syndrome community and we are very excited … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , , , , , | Leave a comment

DSR Episode #5: D.A.D.S.

A national organization comprised of dads dedicated to supporting the fathers and families of children with Down syndrome?  Heck, it’s even named D.A.D.S!  Sounds like a perfect match for our humble podcast about DS from a dad’s perspective! In just over 10 years, … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , , , , , | Leave a comment

DSR Episode #4: Special Needs Advocacy

IEP, IFSP, IDEA, NCLB….WTF?? Did you know that there are trained individuals who will help you decipher the acronyms and navigate the often confusing bureaucracy around special needs services?  Well there are, and these folks are called Special Needs Advocates.  … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , , , , , , | Leave a comment

Aint Seen Nothing Yet (the song – not a new episode!)

Hey all, This is Mark from Down Syndrome Radio.  Papa Jason and I are planning on recording another episode on Tuesday evening.   In the meantime, I thought I would post the words/audio to the ‘Aint Seen Nothin Yet’ Song that … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , , | Comments Off

WORD!

I’m a bit of a wordy. I love words almost as much as I love good cheese and milk. In case you don’t know me, that’s a whole freaking lot. Learning that Dexter would have a tough time with speech … Continue reading

Posted in Uncategorized | Comments Off

Happy Father’s Day

To our Papas that make the world a better place, Happy Father’s Day. We love you. Amy & Colette

Posted in Uncategorized | Comments Off

DSR Episode #3: Essential DS Resources

There are a ton of resources out there with varying degrees of useful information about Down syndrome.  We break down what we think are the most informative, helpful and enjoyable websites, books, blogs and podcasts (of course)!  See the big … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , | Leave a comment

DSR Episode #2: Telling Family and Friends / Common Medical Conditions

You may be thinking….two topics?!?!  Why not?  Yes, we attempt to tackle two topics in this episode. The second half of this episode picks up where we left off in Episode #1.  After we received the news, how did we … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , | Leave a comment

DSR Episode #1: Getting the News

Welcome to the inaugural episode of Down Syndrome Radio by the Down Right Awesome Dads, Mark and Jason.  In this episode, we introduce ourselves and share our stories about receiving the diagnosis. Being informed that your newborn or in utero … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , | Leave a comment

Introducing Down Syndrome Radio!

First, let me introduce myself.  I am Jason, father of the cute little guy floating over Times Square in the logo above.  Up until now this space was mostly filled with the wonderful musings of my lovely wife, Colette.  I … Continue reading

Posted in Down Syndrome Radio | Tagged , , , , | Comments Off

I Am Going to Say the Wrong Thing…Tell Me What I Shouldn’t Say

I’m on a plane again. Skywriting seems to have become a pattern in my posts. From my 2.5’ x 2.5’ box seat I think about all the posts I’ve wanted to write yet haven’t typed out. I think today’s post … Continue reading

Posted in Uncategorized | Comments Off

Adding My Voice

From the moment Milo was born and diagnosed, I’ve been writing to you all. Figuratively, that is. I’ve wanted to release my words out there and let them find a home where they may. I’ve wanted to produce documentaries to … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

Big Apple, I’m After Your Core

To New York City I fly The polar opposite appeals Rerun my day, I won’t I prefer to clear the board Live the story of the now Forgive me, then Concrete, fast streets Live up to your promise Fill me, … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

One Day I Pondered…

It was a spring day in San Diego. I took Dexter, a few months old, to Balboa Park seeking sun and solace. Not too far from the grand fountain I pitched his play gym on a strip of green grass … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

Sibling Revelry

You never know how a child will react to the arrival of a sibling. Very quickly we learned that Eloise, our 3-year-old, would be serial squeezer. I think we’ve said “not so tight” over one thousand times to date. As … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

Chutes & Spirit Lifting Ladders

When I was on KPBS Midday Edition with Maureen Cavanaugh I mentioned my experience with Down syndrome being a bit like Chutes & Ladders. If you don’t know the game it goes a little like this. Some moves can send … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

Thanks & Giving

Around the table each year we take a moment to share what we are most thankful for. This year my reply will be family & friends, both old and new. I’ve always heard that you should count your friends during … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

Man Your Posts!

Blogging is hard mostly because you need to keep up with the regular post part. I promise I will try to get one up every week and do a better job manning the post! Okay so I intended a Whale … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

Team DownRightAwesome: San Diego Buddy Walk 2011.

You can also subscribe to our DownRightAwesome Youtube Channel.

Posted in Uncategorized | Tagged , , , , | Comments Off

Action, Down Right Awesome Reaction!

Signs don’t hoist themselves into the air. Donations don’t just appear. And at last check, shirts can’t wear themselves either. Point is, it takes you, and without your support last weekend’s highly successful event would never have been possible. Thank … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

KPBS Podcasts.

October 17th Monday: We’ll hear from parents, discover available resources, find out why advocacy is so important and look at clinical trials underway right here in San Diego. Joined by San Diego parent Colette Cosky who learned her eight-month-old son … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

It’s Series Time, Make Sure You Tune In!

Down Right Awesome has been working with KPBS to create a 4-part series on Down syndrome. It will air live this Monday through Thursday, October 17 – 20, on Midday Edition with Maureen Cavanaugh. I will open the series on … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

The Big Day Bulletin

Buddy Walk 2011 Info We can’t believe the walk is just a few short days away and that over 70 people are expected to join our team! Above are all the details you’ll need for the big day. There will … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

Sweet T’s

I thought about holding off on this post since the shirts have not yet arrived on our doorstep. I am taking a chance though in hopes of enticing some more folks to sign-up with this sweet T. Pretty cool huh? … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

Signs of Support, Sign of Friendship

The Buddy Walk is almost here and we’re getting ready. This is our first time participating and I am sure it will be a very emotional day for us. In fact, when I heard the Euphoria Brass Band play a … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off

It’s Down Right Awesome™

Down Right Awesome™ was created for Dexter & Milo; two awesome boys with a lot of potential that happen to have Down syndrome. Here, on our social spaces and in other cool places, we gather with our ever-growing group of … Continue reading

Posted in Uncategorized | Tagged , , | Comments Off