DSR Episode #9: The Jérôme Lejeune Foundation

The mission of the Jérôme Lejeune Foundation is a simple and concise summary of the reasons why we started this podcast:  Research, care, advocacy.  Seems like a perfect match!

Dr. Jérôme Lejeune

Dr. Jérôme Lejeune was a French pediatrician and geneticist who, in 1958, discovered the link between Down syndrome and the extra copy of the 21st chromosome.  He was a fierce advocate for research and dedicated himself to finding treatments for Down syndrome and other intellectual disabilities.  His family established the Fondation Jérôme Lejeune in Paris to continue his research after his death in 1994.

Mark and some of the folks from the French foundation, including Mrs. Lejeune.

Our guest on this episode of the podcast is Mark Bradford, President of the Jérôme Lejeune Foundation, USA.  I had the pleasure of meeting Mark at the kickoff event for the Race Across America.  He is the Down Right Awesome Dad of seven children.  We probably could have spent the entire hour discussing how one handles seven kids, but the work being done by the Lejeune Foundation is so interesting we’ll have to save that topic for another show.  Mark gives us some history of Dr. Lejeune and the foundation that bears his name.  We also discuss how the foundation strives to achieve the three fundamental points of its mission.

Clockwise: Mark and his family, Mark’s sons Thomas and William and Thomas (left) and a friend at school.

Rick from Down Syndrome Daily joins us again for our story of the week.  This week, we hear the story of Mark Stanganelli.  In a ridiculous move caused by budget cuts, Mark was fired from his $12 per week job.  He was later reinstated and, when his story broke, received many other offers from generous folks out there.

Download Down Syndrome Radio, Episode #9.
Better yet…subscribe, rate us and leave a comment on iTunes!

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2 Responses to DSR Episode #9: The Jérôme Lejeune Foundation

  1. Andy says:

    Hello Down Right Awesome Dads

    Just a quick note to say how useful and encouraging I’m finding the podcast. I’m an avid listener from the UK and soon to be dad. My wife and I found out a few weeks ago that our baby (due 15th October) will be born with Down Syndrome. The timing of you starting the podcast and me finding it couldn’t have been better. The information, encouragement, stories and interesting guest speakers have been a great support to me.

    Keep up the great work and Thank You!

    Andy

    PS: I also left this as a review in Itunes – not sure if you can see that from the US.

  2. papajason says:

    Andy,
    Thank you so much for the comment! It makes all of the extra hours very worth it. Best of luck to you and your family! Keep us posted from across the pond. I am positive that you will make a Down Right Awesome Dad.
    papajason

    Btw…I could not see your comment in iTunes. This explains everything….maybe all of our listeners are in the UK and we can’t see their awesome comments! ;-)

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