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Tag Archives: Down Syndrome
DSR Episode #32: Kayla!
We had a super special guest on the show for this episode – Princess Kayla herself! Fresh from her appearance on the Today Show, Kayla tells us all about it! Some other recent highlights: Kayla travels to the White House … Continue reading
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Tagged dads, Down Right Awesome, Down Syndrome, Education, kids
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DSR Episode #29: Potty Training!
Believe it or not, we actually felt qualified to take this one on ourselves! Between us we have SIX children successfully trained! First things first – We know how lucky we are that our three children with Down syndrome took … Continue reading
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Tagged Down Right Awesome, Down Syndrome, Down Syndrome Radio, Potty Training
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DSR Episode #25: DS Connect with Lisa Kaeser
The new DS Registry will provide huge opportunities to improve the lives of our children! We had the opportunity to speak with Lisa Kaeser about DS Connect which launched in September. Just listen to the list of potential benefits that … Continue reading
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Tagged Down Syndrome, Down Syndrome Radio, DS Connect, DSR
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DSR Episode #24: DS Achieves with Lito Ramirez
We had the opportunity to speak with Lito Ramirez, founder of Down Syndrome Achieves. DSA’s mission includes Research and Funding, Political Advocacy and Education. They have a new initiative called ONE21. ONE21 seeks to fund the development of a dedicated … Continue reading
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Tagged biobank, Down Syndrome, Down Syndrome Radio, DS Achieves, DSR, One21
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DSR Episode #23: Dr. Kishore Vellody!
Dr. Vellody is the Medical Director of the Down Syndrome Center at the Children’s Hospital of Pittsburgh. This guy REALLY understands the medical issues faced by our children! Because the center that he directs is specialized, he sees an incredible … Continue reading
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Tagged Down Syndrome, Down Syndrome Radio, DSR, Medical, siblings
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DSR Episode #9: The Jérôme Lejeune Foundation
The mission of the Jérôme Lejeune Foundation is a simple and concise summary of the reasons why we started this podcast: Research, care, advocacy. Seems like a perfect match! Dr. Jérôme Lejeune was a French pediatrician and geneticist who, in … Continue reading
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Tagged Down Right Awesome, Down Syndrome, Down Syndrome Daily, Down Syndrome Radio, DRA, DSD, DSR, fathers, Jerome Lejeune, kids
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DSR Episode #8: Special Olympics
In the short time that we have been recording this podcast, we have always stressed the importance of siblings in our kids’ lives. In 1962 one sibling raised the bar for brothers and sisters everywhere. Rosemary Kennedy’s sister believed that … Continue reading
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Tagged dads, Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR, fathers, kids
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DSR Episode #7: NDSC Convention Download
Running on fumes and adrenaline, we recap the highlights of the NDSC Convention from a very busy weekend in Washington, DC. From advocating on Capitol Hill to dancing the night away – with workshops, exhibits, hallway and pool meetings in … Continue reading
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Tagged Apps, Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR, fathers, kids
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DSR Episode #6: Down Syndrome Daily and NDSC Convention Prep
In the first few installments of this humble podcast, we found ourselves continuously visiting one site for ideas for our “great/amazing/inspirational story” segment. Down Syndrome Daily is an excellent resource for the Down syndrome community and we are very excited … Continue reading
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Tagged Down Right Awesome, Down Syndrome, Down Syndrome Daily, Down Syndrome Radio, DRA, DSD, DSR, fathers, kids
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DSR Episode #5: D.A.D.S.
A national organization comprised of dads dedicated to supporting the fathers and families of children with Down syndrome? Heck, it’s even named D.A.D.S! Sounds like a perfect match for our humble podcast about DS from a dad’s perspective! In just over 10 years, … Continue reading
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Tagged children, dads, Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR, fathers, kids
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DSR Episode #4: Special Needs Advocacy
IEP, IFSP, IDEA, NCLB….WTF?? Did you know that there are trained individuals who will help you decipher the acronyms and navigate the often confusing bureaucracy around special needs services? Well there are, and these folks are called Special Needs Advocates. … Continue reading
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Tagged children, dads, Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR, fathers, kids, special needs
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Aint Seen Nothing Yet (the song – not a new episode!)
Hey all, This is Mark from Down Syndrome Radio. Papa Jason and I are planning on recording another episode on Tuesday evening. In the meantime, I thought I would post the words/audio to the ‘Aint Seen Nothin Yet’ Song that … Continue reading
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Tagged children, dads, Down Syndrome, fathers, kids, special needs
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DSR Episode #3: Essential DS Resources
There are a ton of resources out there with varying degrees of useful information about Down syndrome. We break down what we think are the most informative, helpful and enjoyable websites, books, blogs and podcasts (of course)! See the big … Continue reading
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Tagged Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR
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DSR Episode #2: Telling Family and Friends / Common Medical Conditions
You may be thinking….two topics?!?! Why not? Yes, we attempt to tackle two topics in this episode. The second half of this episode picks up where we left off in Episode #1. After we received the news, how did we … Continue reading
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Tagged Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR
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DSR Episode #1: Getting the News
Welcome to the inaugural episode of Down Syndrome Radio by the Down Right Awesome Dads, Mark and Jason. In this episode, we introduce ourselves and share our stories about receiving the diagnosis. Being informed that your newborn or in utero … Continue reading
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Tagged Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR
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Introducing Down Syndrome Radio!
First, let me introduce myself. I am Jason, father of the cute little guy floating over Times Square in the logo above. Up until now this space was mostly filled with the wonderful musings of my lovely wife, Colette. I … Continue reading
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Tagged Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR
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Adding My Voice
From the moment Milo was born and diagnosed, I’ve been writing to you all. Figuratively, that is. I’ve wanted to release my words out there and let them find a home where they may. I’ve wanted to produce documentaries to … Continue reading
Big Apple, I’m After Your Core
To New York City I fly The polar opposite appeals Rerun my day, I won’t I prefer to clear the board Live the story of the now Forgive me, then Concrete, fast streets Live up to your promise Fill me, … Continue reading
One Day I Pondered…
It was a spring day in San Diego. I took Dexter, a few months old, to Balboa Park seeking sun and solace. Not too far from the grand fountain I pitched his play gym on a strip of green grass … Continue reading
Sibling Revelry
You never know how a child will react to the arrival of a sibling. Very quickly we learned that Eloise, our 3-year-old, would be serial squeezer. I think we’ve said “not so tight” over one thousand times to date. As … Continue reading
Chutes & Spirit Lifting Ladders
When I was on KPBS Midday Edition with Maureen Cavanaugh I mentioned my experience with Down syndrome being a bit like Chutes & Ladders. If you don’t know the game it goes a little like this. Some moves can send … Continue reading
Thanks & Giving
Around the table each year we take a moment to share what we are most thankful for. This year my reply will be family & friends, both old and new. I’ve always heard that you should count your friends during … Continue reading
Man Your Posts!
Blogging is hard mostly because you need to keep up with the regular post part. I promise I will try to get one up every week and do a better job manning the post! Okay so I intended a Whale … Continue reading
Team DownRightAwesome: San Diego Buddy Walk 2011.
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Tagged Buddy Walk, Down Right Awesome, Down Syndrome, DRA, San Diego
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Action, Down Right Awesome Reaction!
Signs don’t hoist themselves into the air. Donations don’t just appear. And at last check, shirts can’t wear themselves either. Point is, it takes you, and without your support last weekend’s highly successful event would never have been possible. Thank … Continue reading
KPBS Podcasts.
October 17th Monday: We’ll hear from parents, discover available resources, find out why advocacy is so important and look at clinical trials underway right here in San Diego. Joined by San Diego parent Colette Cosky who learned her eight-month-old son … Continue reading
It’s Series Time, Make Sure You Tune In!
Down Right Awesome has been working with KPBS to create a 4-part series on Down syndrome. It will air live this Monday through Thursday, October 17 – 20, on Midday Edition with Maureen Cavanaugh. I will open the series on … Continue reading
The Big Day Bulletin
Buddy Walk 2011 Info We can’t believe the walk is just a few short days away and that over 70 people are expected to join our team! Above are all the details you’ll need for the big day. There will … Continue reading
Sweet T’s
I thought about holding off on this post since the shirts have not yet arrived on our doorstep. I am taking a chance though in hopes of enticing some more folks to sign-up with this sweet T. Pretty cool huh? … Continue reading
Signs of Support, Sign of Friendship
The Buddy Walk is almost here and we’re getting ready. This is our first time participating and I am sure it will be a very emotional day for us. In fact, when I heard the Euphoria Brass Band play a … Continue reading
It’s Down Right Awesome™
Down Right Awesome™ was created for Dexter & Milo; two awesome boys with a lot of potential that happen to have Down syndrome. Here, on our social spaces and in other cool places, we gather with our ever-growing group of … Continue reading