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Tag Archives: Down Syndrome
DSR Episode #9: The Jérôme Lejeune Foundation
The mission of the Jérôme Lejeune Foundation is a simple and concise summary of the reasons why we started this podcast: Research, care, advocacy. Seems like a perfect match! Dr. Jérôme Lejeune was a French pediatrician and geneticist who, in … Continue reading
Posted in Down Syndrome Radio
Tagged Down Right Awesome, Down Syndrome, Down Syndrome Daily, Down Syndrome Radio, DRA, DSD, DSR, fathers, Jerome Lejeune, kids
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DSR Episode #8: Special Olympics
In the short time that we have been recording this podcast, we have always stressed the importance of siblings in our kids’ lives. In 1962 one sibling raised the bar for brothers and sisters everywhere. Rosemary Kennedy’s sister believed that … Continue reading
Posted in Down Syndrome Radio
Tagged dads, Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR, fathers, kids
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DSR Episode #7: NDSC Convention Download
Running on fumes and adrenaline, we recap the highlights of the NDSC Convention from a very busy weekend in Washington, DC. From advocating on Capitol Hill to dancing the night away – with workshops, exhibits, hallway and pool meetings in … Continue reading
Posted in Down Syndrome Radio
Tagged Apps, Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR, fathers, kids
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DSR Episode #6: Down Syndrome Daily and NDSC Convention Prep
In the first few installments of this humble podcast, we found ourselves continuously visiting one site for ideas for our “great/amazing/inspirational story” segment. Down Syndrome Daily is an excellent resource for the Down syndrome community and we are very excited … Continue reading
Posted in Down Syndrome Radio
Tagged Down Right Awesome, Down Syndrome, Down Syndrome Daily, Down Syndrome Radio, DRA, DSD, DSR, fathers, kids
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DSR Episode #5: D.A.D.S.
A national organization comprised of dads dedicated to supporting the fathers and families of children with Down syndrome? Heck, it’s even named D.A.D.S! Sounds like a perfect match for our humble podcast about DS from a dad’s perspective! In just over 10 years, … Continue reading
Posted in Down Syndrome Radio
Tagged children, dads, Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR, fathers, kids
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DSR Episode #4: Special Needs Advocacy
IEP, IFSP, IDEA, NCLB….WTF?? Did you know that there are trained individuals who will help you decipher the acronyms and navigate the often confusing bureaucracy around special needs services? Well there are, and these folks are called Special Needs Advocates. … Continue reading
Posted in Down Syndrome Radio
Tagged children, dads, Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR, fathers, kids, special needs
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Aint Seen Nothing Yet (the song – not a new episode!)
Hey all, This is Mark from Down Syndrome Radio. Papa Jason and I are planning on recording another episode on Tuesday evening. In the meantime, I thought I would post the words/audio to the ‘Aint Seen Nothin Yet’ Song that … Continue reading
Posted in Down Syndrome Radio
Tagged children, dads, Down Syndrome, fathers, kids, special needs
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DSR Episode #3: Essential DS Resources
There are a ton of resources out there with varying degrees of useful information about Down syndrome. We break down what we think are the most informative, helpful and enjoyable websites, books, blogs and podcasts (of course)! See the big … Continue reading
Posted in Down Syndrome Radio
Tagged Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR
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DSR Episode #2: Telling Family and Friends / Common Medical Conditions
You may be thinking….two topics?!?! Why not? Yes, we attempt to tackle two topics in this episode. The second half of this episode picks up where we left off in Episode #1. After we received the news, how did we … Continue reading
Posted in Down Syndrome Radio
Tagged Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR
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DSR Episode #1: Getting the News
Welcome to the inaugural episode of Down Syndrome Radio by the Down Right Awesome Dads, Mark and Jason. In this episode, we introduce ourselves and share our stories about receiving the diagnosis. Being informed that your newborn or in utero … Continue reading
Posted in Down Syndrome Radio
Tagged Down Right Awesome, Down Syndrome, Down Syndrome Radio, DRA, DSR
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