Tag Archives: DSR

DSR Episode #25: DS Connect with Lisa Kaeser

The new DS Registry will provide huge opportunities to improve the lives of our children! We had the opportunity to speak with Lisa Kaeser about DS Connect which launched in September.  Just listen to the list of potential benefits that … Continue reading

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DSR Episode #24: DS Achieves with Lito Ramirez

We had the opportunity to speak with Lito Ramirez, founder of Down Syndrome Achieves.  DSA’s mission includes Research and Funding, Political Advocacy and Education.  They have a new initiative called ONE21.  ONE21 seeks to fund the development of a dedicated … Continue reading

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DSR Episode #23: Dr. Kishore Vellody!

Dr. Vellody is the Medical Director of the Down Syndrome Center at the Children’s Hospital of Pittsburgh. This guy REALLY understands the medical issues faced by our children! Because the center that he directs is specialized, he sees an incredible … Continue reading

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DSR Episode #22: Signing Time with Rachel Coleman!

Rachel takes us back in time, telling us the story of her first child Leah and handling her deafness from diagnosis to the development of Signing Time.  Like our children with Down Syndrome, Rachel found that Leah was considered ‘different’ … Continue reading

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DSR Episode #20: Current Challenges – Ages 2, 4 and 7

In this episode Jason, Mark and Rick each give an update on their child and the current challenges they are facing for their age category. Jason’s Dexter is two years old and is now walking.  What a big milestone walking … Continue reading

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Episode #13: Everybody Plays with Kelle Hampton and Colette Cosky

There is something special going on here in San Diego this week.  The seeds for true inclusion are being sown.  These kids may think they are just playing with some cool toys in a really nice house, but they will … Continue reading

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Episode #12: Chip Gerhardt and the Buddy Walk

October is National Down Syndrome Awareness month and we kick it off with a bang.  We are very pleased to welcome Chip Gerhardt, Chairman of the Board of the National Down Syndrome Society (NDSS) to the show.  Chip is a … Continue reading

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Episode #11: Dana Halle and The Learning Program!

Dana Halle has made HUGE contributions to the Down Syndrome community over the years.  She co-founded the Down Syndrome Foundation of Orange County many years back and more recently, she developed ‘The Learning Program’ which is accelerating education for people with Down … Continue reading

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DSR Episode #10: Apptastic!

Rick from Down Syndrome Daily joins us again to talk apps.  In typical dad fashion, we quickly take a turn for the worse and venture off topic.  After trading bodily fluid stories, we get back on track and discuss our … Continue reading

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DSR Episode #9: The Jérôme Lejeune Foundation

The mission of the Jérôme Lejeune Foundation is a simple and concise summary of the reasons why we started this podcast:  Research, care, advocacy.  Seems like a perfect match! Dr. Jérôme Lejeune was a French pediatrician and geneticist who, in … Continue reading

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DSR Episode #8: Special Olympics

In the short time that we have been recording this podcast, we have always stressed the importance of siblings in our kids’ lives.  In 1962 one sibling raised the bar for brothers and sisters everywhere.  Rosemary Kennedy’s sister believed that … Continue reading

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DSR Episode #7: NDSC Convention Download

Running on fumes and adrenaline, we recap the highlights of the NDSC Convention from a very busy weekend in Washington, DC.  From advocating on Capitol Hill to dancing the night away – with workshops, exhibits, hallway and pool meetings in … Continue reading

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DSR Episode #6: Down Syndrome Daily and NDSC Convention Prep

In the first few installments of this humble podcast, we found ourselves continuously visiting one site for ideas for our “great/amazing/inspirational story” segment.  Down Syndrome Daily is an excellent resource for the Down syndrome community and we are very excited … Continue reading

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DSR Episode #5: D.A.D.S.

A national organization comprised of dads dedicated to supporting the fathers and families of children with Down syndrome?  Heck, it’s even named D.A.D.S!  Sounds like a perfect match for our humble podcast about DS from a dad’s perspective! In just over 10 years, … Continue reading

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DSR Episode #4: Special Needs Advocacy

IEP, IFSP, IDEA, NCLB….WTF?? Did you know that there are trained individuals who will help you decipher the acronyms and navigate the often confusing bureaucracy around special needs services?  Well there are, and these folks are called Special Needs Advocates.  … Continue reading

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DSR Episode #3: Essential DS Resources

There are a ton of resources out there with varying degrees of useful information about Down syndrome.  We break down what we think are the most informative, helpful and enjoyable websites, books, blogs and podcasts (of course)!  See the big … Continue reading

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DSR Episode #2: Telling Family and Friends / Common Medical Conditions

You may be thinking….two topics?!?!  Why not?  Yes, we attempt to tackle two topics in this episode. The second half of this episode picks up where we left off in Episode #1.  After we received the news, how did we … Continue reading

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DSR Episode #1: Getting the News

Welcome to the inaugural episode of Down Syndrome Radio by the Down Right Awesome Dads, Mark and Jason.  In this episode, we introduce ourselves and share our stories about receiving the diagnosis. Being informed that your newborn or in utero … Continue reading

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Introducing Down Syndrome Radio!

First, let me introduce myself.  I am Jason, father of the cute little guy floating over Times Square in the logo above.  Up until now this space was mostly filled with the wonderful musings of my lovely wife, Colette.  I … Continue reading

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